What a week it was. So much has happened. This is the part of the cancer journey I am not sure I could convey to you unless we were talking. That part when frustration, bad scheduling, and changes in the doctor's decisions make life very crazy. I believe it has calmed down now. There is much I could say, but I am going to keep this brief.
On Friday the 15th, I was at the CTCA all scheduled up to get the chemo. On Friday they changed their mind. I went home for the weekend. We were back at the CTCA on Monday all prepared to get some radiation, I know what a change! So turns out that someone broke the machine, we had to wait on a part. Monday wasted, however they did try to call and tell us not to come, but we were already in the car on the way over. Tuesday, things get started, Wednesday radiated. On Friday (yesterday) there was a question as to whether chemo could happen, the radiologist had suggested a week in between radiation and chemo, Craig spoke to the oncologist and it was a go, yay! I wanted to get started. My mom and I went out yesterday for the chemo. We also have to meet with a doctors assistant who I do not like. Unfortuneately we will have to meet with her every time there is a direct chemo (that means chemo without seeing the doctor first). This is the second time that she has made comments that I have not appreciated. Such as, her first comment upon seeing me was " I know you are not here for chemo." Well we were on the infustion floor, and they were at the time taking my blood, so pretty much there for the chemo. Who wouldn't want chemo?! She was still under the impression that I was still on a week lull, which is fine I know her job is to make sure that I am safe, however to question me in such a way, and then also to not say hello or anything else, wow, she is on my list. She has also questioned my choice of homeopathic doctor telling me that he is not qualified to take care of the cancer issue. So I think we will probably be friends. :)
Anyway my favorite part of the whole thing, was that I had called Craig to see exactly what had happened with the oncologist and where these wires might have gotten crossed. I was on the phone with him when the doctor's assistant came over to give us the news that there was not going to be any chemo today. I had laid the phone down and Craig could hear everything, but then he yelled into the phone that he wanted to talk to her. It was so funny to me because he was at his desk at work and he was yelling to talk to her. It actually was a good talk because there was much that happened and a lot of disrespect of our time and such.
Like I said much happened this is not even half of it. I still like CTCA, but this week has not been their typical care. I got quality attention and care, however the schedule and such total mess.
I am looking forward to getting into a routine, and the chemo and getting this thing finally kicked in the butt. :)
Subscribe to:
Post Comments (Atom)
Super frustrating.
ReplyDeleteI wish I could have heard Craig. Good for him.
Okay, girl. Kick it's butt!