It has been a little while since I have been home so I wanted to give a little update on how I am doing. I am much stronger, that is so nice. A lot of the water which I came home with on my legs has left. I am still struggling with some other water weight which has been incredibly frustrating to me, but I am trying to be patient.
That is one the the reasons we are going to get rid of my primary care provider doctor. She does not seem to be addressing the water issue well. Plus there have been conversations and such where we have been convinced she is not all that she is cracked up to be. Lots of our recent encounters with doctors have also convinced us that I am a hard case and they just don't know how to handle that. That may sound kind of ridiculous, and perhaps like we don't know what we are talking about or being difficult, however this is not altogether new. I have experienced similar things before this. So hopefully the new primary doctor will be better. I am nervous we won't find anyone in Columbus that is willing to care for me well and is ready to have a patient with difficult diagnosis. I have my appointment with the new Dr. on March 3. She came recommended from the nutritionist's group and will work with his nurse practitioner but that doesn't means she is not also a quacko. I do want to get there to fund out and it feels far away because I will still need to visit the doctor I have for any issues which may come up till then.
Other than that, I am catching up on HGTV, Law and Order and any other mystery shows. What a total disaster. When I first got out of the hospital it was hard for me to read, I don't know what causes that, but now I have a book I have started as well Oogy. It is about a dog that should have been a fighting dog, refused, almost died, and how he has a good family now. Since we love dogs my mother in law and her friend brought these books over, and I am greatful. I am also cracked up that they made sure the endings were all good, but I am glad they did.
Sunday, February 20, 2011
Wednesday, February 2, 2011
By grace I am here, and home
During the night on January 21, we made our way yet again to the emergency room. It was evident that again the veracies were angry and bleeding. Little did we know this would be the biggest challenge yet.
Apparently I was done with being scoped and decided to fight the scope thing that goes down the throat. They also had decided to do many checks, I believe three scopes during my time there, and because I was already anesthetized I believe they kept me in that state, and also to ensure I wouldn't have breathing issues they inserted a breathing tube. Yeah, it got downright scary. I will have to say I can't recount anything really solid without consulting Craig. My experience was more of a trippy one. I hallucinated, I couldn't remember how I got there, thought I was dreaming in what I call the torture room (it was the room they removed the breathing tube or something), and I kept wondering where my family was. Then I couldn't speak when the tube was removed. I was quite whispery for a while, plus with the super drugs I was tired and not always able to communicate well.
I was in the hospital 12 days. I came home on Monday. I have some things that the hospital left me with, water weight and air from all the scopes but I hope to be getting some help with that soon. Physical therapy people are going to come to the house so hopefully they can help this to work itself out. For now I am pretty uncomfortable but I can pretty much move around as I want, not really doing anything but able to move which is a blessing.
I thank those of you who prayed while I was in the hospital and I thank you for any prayers that you may pray for me now. I have to say that I was overwhelmed at many times by the number of people praying, about what happened, and that grace was extended to me and my family during such a stressful time. I am still overwhelmed when I think of it all.
I know I need the healing hand of God on me because I am still working to relieve the pressure/stress the liver has on it. I also know that Jesus had much mercy on me and was teaching and working on my heart during the hospital stay. It is amazing how God makes his way known.
I wish to share more but it will have to be later I have to go and rest a bit, but again thank you for your prayers and support.
Apparently I was done with being scoped and decided to fight the scope thing that goes down the throat. They also had decided to do many checks, I believe three scopes during my time there, and because I was already anesthetized I believe they kept me in that state, and also to ensure I wouldn't have breathing issues they inserted a breathing tube. Yeah, it got downright scary. I will have to say I can't recount anything really solid without consulting Craig. My experience was more of a trippy one. I hallucinated, I couldn't remember how I got there, thought I was dreaming in what I call the torture room (it was the room they removed the breathing tube or something), and I kept wondering where my family was. Then I couldn't speak when the tube was removed. I was quite whispery for a while, plus with the super drugs I was tired and not always able to communicate well.
I was in the hospital 12 days. I came home on Monday. I have some things that the hospital left me with, water weight and air from all the scopes but I hope to be getting some help with that soon. Physical therapy people are going to come to the house so hopefully they can help this to work itself out. For now I am pretty uncomfortable but I can pretty much move around as I want, not really doing anything but able to move which is a blessing.
I thank those of you who prayed while I was in the hospital and I thank you for any prayers that you may pray for me now. I have to say that I was overwhelmed at many times by the number of people praying, about what happened, and that grace was extended to me and my family during such a stressful time. I am still overwhelmed when I think of it all.
I know I need the healing hand of God on me because I am still working to relieve the pressure/stress the liver has on it. I also know that Jesus had much mercy on me and was teaching and working on my heart during the hospital stay. It is amazing how God makes his way known.
I wish to share more but it will have to be later I have to go and rest a bit, but again thank you for your prayers and support.
Saturday, January 15, 2011
Just another day...
Hello again! I have thought I am waaaay beyond overdue for updating the blog. When I opened it up it is definitely true.
Let's see, November and December. In a brief synopsis we have been skipping around on drugs, with the explanation being mixed results. That's been frustrating. So I am to go to the oncologist on Monday hopefully I will get a newly approved chemotherapy drug for people who have had a few different drugs during their cancer treatment.
In December I started seeing a nutritionist as well. We were led to him through different friends at our different work places so that is neat. He has a pretty interesting theory going on that the body needs a particular amount of nutrition to be healthy, and also to make the chemotherapy be effective. That sounds quite positive to me since there has been a mixed response, and I have been on chemotherapy treatments for a long time so logically that made sense to us. I am still working on taking all of his supplements, by the time I am at the level he wants I think I will be taking handfuls of pills a day.
Let's see, what else? Really I just beg for your prayers for my liver it has been temper mental, fluctuating in function, contributing to the drugs being confused. The liver getting happier is now a key part of the healing process to continue.
I think that this whole experience for those who are watching, waiting, can become just the way life is. I admit I find that to be often true for me, life being all doctors, appointments, drugs, phone calls, questions, and I can't remember what it was like to not have to remember all the appointments and all the drugs, and what it was like to comb my hair. I don't even think I ever took a multi vitamin before cancer. Weird life. So I am saying I can understand if you are weary with me with these issues, with the same old, same old. But I am asking if you remember sometime this week, ask Jesus for good things for my shot up old liver, and that he bless the doctors, drugs, and advice I have received and am using now, and that we can see positive results and quickly.
Let's see, November and December. In a brief synopsis we have been skipping around on drugs, with the explanation being mixed results. That's been frustrating. So I am to go to the oncologist on Monday hopefully I will get a newly approved chemotherapy drug for people who have had a few different drugs during their cancer treatment.
In December I started seeing a nutritionist as well. We were led to him through different friends at our different work places so that is neat. He has a pretty interesting theory going on that the body needs a particular amount of nutrition to be healthy, and also to make the chemotherapy be effective. That sounds quite positive to me since there has been a mixed response, and I have been on chemotherapy treatments for a long time so logically that made sense to us. I am still working on taking all of his supplements, by the time I am at the level he wants I think I will be taking handfuls of pills a day.
Let's see, what else? Really I just beg for your prayers for my liver it has been temper mental, fluctuating in function, contributing to the drugs being confused. The liver getting happier is now a key part of the healing process to continue.
I think that this whole experience for those who are watching, waiting, can become just the way life is. I admit I find that to be often true for me, life being all doctors, appointments, drugs, phone calls, questions, and I can't remember what it was like to not have to remember all the appointments and all the drugs, and what it was like to comb my hair. I don't even think I ever took a multi vitamin before cancer. Weird life. So I am saying I can understand if you are weary with me with these issues, with the same old, same old. But I am asking if you remember sometime this week, ask Jesus for good things for my shot up old liver, and that he bless the doctors, drugs, and advice I have received and am using now, and that we can see positive results and quickly.
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